My cousin with ME/CFS also took VSL#3 and kefir (among other things), yet seemed to find improvement in test results which translated to a great improvement in his ME/CFS.
I used dr. K. deMeirleir's Protea Biopharma Neurotoxic Metabolite Test Kit which aims to detect the presence of abnormal metabolites in the urine. It is a simple DIY kit that costs £25-35. These metabolites are related to the production of hydrogen sulphide (H2S), which is present in the body in small amounts under normal conditions and has certain physiological roles. An excess can be very detrimental, causing neurotoxic symptoms like photo-sensitivity, overload phenomenon and other symptoms of ME/CFS. Over-production of H2S is related to gut dysbiosis - too many bad bugs and not enough beneficial ones. DeMeirleir has concluded that a large proportion of people with ME/CFS present with such dysbiosis. My sample demonstrates a strong positive for H2S. My Comprehensive Digestive and Stool Analysis showed no significant pathogens, though a high index of dysbiosis was present with 0% L. acidophilous (after 12 years of taking Natren, VSL#3, kefir and others), and low bifidus. I do not eat any sugars or grains. My cousin with ME/CFS also took VSL#3 and kefir (among other things), yet seemed to find improvement in test results which translated to a great improvement in his ME/CFS.
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AuthorI have lived with ME/CFS for fourteen years, nine of them totally bed-bound. I post about ME/CFS and related health and advocacy issues such as vaccination, EMFs, radiation and GM foods from the perspective of a holistic practitioner interested in healing our bodies, relationships, societies and mother Earth. My approach integrates science and spirit and includes the best of alternative and allopathc healing modalities and research. Archives
April 2013
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