This is a fantastic trailer that gets into the impact, severity and politics of ME/CFS. There is also a UK version posted on May 14, 2011.
2 Comments
John Shell
4/16/2013 10:20:17 pm
Thank God this disease is coming to a movie format! I've had ME for almost 4 years and I pray every night for a treatment covered by insurance or for God to take me in my sleep. I won't take my life even though you can't not think about it when you're life as you knew it is gone forever. I diminish a little more each day. After 26 months I finally got my disability hearing March 14,2013. The medical evidence was so overwhelming the Judge called my Lawyer and cancelled my hearing! Fully approved but the Judge had something in store for me in his final comments as follows: " Expected to improve with appropriate treatment. Therefore a 24 month medical review is ordered. I've been on Ampligen for a year but could no longer afford it, failed tilt table test which was like torture, extremely high titters of HHV6A, constant pain, constant headaches,pain in my eyes and behind them, I can see the veins bulging in my legs and feet from blood pooling,IBS,insomnia,night sweats so bad I go through two tshirts a night and smell like urine! Swollen glands in my neck and painful win swallowing,zero sex drive,hypo thyroid,hypo gonad,joint pain....... Ampligen made me about 60% better but the Government will never approve it too keep protecting insurance companies that line politicians pockets;Obama,Sebelius,Koh,Unger all have blood on their hands! Innocent children rotting in beds with feeding tubes who might benefit from Ampligen aren't given the chance! Government is pure evil and this wasn't what our forefathers intended! I'm a Gulf War Veteran who had the privlidge to defend this great nation! I have paid into social security for 26 years and will not live to 65 to get my money back! Yet even though after nearly 26 months of being denied twice by SSA and winning my disability case for a disease in which there is no FDA TREATMENT I get a 24 month review and am told by the Judge I'm expected to improve with appropriate treatment! What treatment is that Judge? Something they can throw in you're decision to hopefully stop you're benefits in 24 months! I'm quite sure the appeal won't take 26 months since their paying you YOU'RE MONEY but thet think its their MONEY!!! If I appeal the fully favorable decision with back pay and at least 24 months of my money, I'll get nothing until that appeal process is ongoing! I love my country but you can't tell me this is acceptable in anyway,shape or form. Government has and always will be self serving and big business will always call the shots!
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priya
4/17/2013 01:23:04 am
thanks for sharing your experience, john. sadly, it echoes that os so many others.
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AuthorI have lived with ME/CFS for fourteen years, nine of them totally bed-bound. I post about ME/CFS and related health and advocacy issues such as vaccination, EMFs, radiation and GM foods from the perspective of a holistic practitioner interested in healing our bodies, relationships, societies and mother Earth. My approach integrates science and spirit and includes the best of alternative and allopathc healing modalities and research. Archives
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